Action for Pulmonary Fibrosis
Action for Pulmonary Fibrosis is a national charity which aims to stop Pulmonary Fibrosis and to enable people living with Pulmonary Fibrosis to lead the best life possible.
Pulmonary fibrosis (lung scarring) describes a group of interstitial lung diseases where the lungs become progressively stiffer and smaller, eventually leading to low oxygen levels in the blood. Pulmonary Fibrosis (PF) affects around 70,000 people in the UK. Progressive Pulmonary Fibrosis is a life limiting disease.
Action for Pulmonary Fibrosis (APF) directly funds research to find a cure, raises awareness of PF and improves access to high quality care through campaigning and education as well as raising funds to fuel our mission. We also provide direct support through:
PF support line available Monday to Friday 9am - 5pm. Tel: 01223785725 supportline@actionpf.org. Our team including a specialist nurse can provide information on living with PF, practical support and signposting to relevant services
Befriending - our trained team of volunteers have lived experience of PF, listen with empathy and are non judgemental
Information. Visit our website to download or order copies of our information packs for people recently diagnosed with PF, their families and carers and a host of other information including PF and Benefits and treatments for PF. You can also sign up for our e news bulletin and Insider Magazine
Local Support Groups for people living with or affected by PF and online groups for Carers and transplant patients. Contact Cathy Jackson-Read Network Support Co-ordinator on 07931 745886 or search local support groups on our website.
We also offer information and support to Healthcare Professionals. See our website or contact Cathy for more information.